Tomorrow is when I talk to the neurologist about the results of Tuesday’s test. The doc has initially diagnosed benign fasciculation syndrome. I’m curious to learn whether he maintains his diagnosis tomorrow.
Twitching continues, mainly in my glutes now. My left bicep has been feeling fatigued for two days, too, though I have not done anything strenuous with it.
On another note, I was checking the Gulf War Illness page on Facebook today when a visitor posted about her veteran husband’s cramp fasciculation syndrome:
Hi every one. My husband has been really sick. Same as most of you. We have been going to civilian docs until a few months ago. He is now in the VA System and still seeing civilian docs to. We thought he might have ALS because he has twitches and cramps, server fatigue, muscle wasting and weakness even though he is still very strong compared to most people. The neurologist 4 years ago DX him with cramping fisiculasion syndrome. He is getting worse all the time. He also has PTSD that until now he has not for treatment for.
We have not filled a claim yet because one thing I have picked up from this group is make sure all our ducks are in a row.
My question is how do you find a doctor that understand Gulf War Syndrome? He also has tinites, sleep apnea, witch we have VA appointments for in the next few months.
That got me doing a little Googling for “Gulf War” and “cramp fasciculation syndrome.” That brought me to a video posted by Jason Blackwood of his muscle twitching.
Seeing that put a chill down my spine. This guy’s twitching looks exactly like mine.
After two decades of mystery, I’m hopeful that I might start getting some answers tomorrow. Wish me luck.