Twitches and fatigue

My initial optimism about the magnesium supplements helping with the muscle twitches I’ve had has worn off. The twitching has continued, spread out all over my body now. In fact, one night last week I felt the muscles between my shoulder blades twitch when I was sleeping – waking me up. It’s the biggest damn pain in the ass.

To top it off, we had only walked about the fairgrounds for about an hour before I started feeling very fatigued. I felt like my arm and leg muscles were slow as molasses. It dawned on me that night that I am finally able to effectively define fatigue versus simple tiredness. Fatigue is like tiredness but without the mental urge to sleep. Fatigue is not having any energy while still maintaining the will to do something. The mind is willing but the body unable. It seems that the fatigue that would once make a visit to me for a few weeks every year or so has begun to occur far more frequently and persistently. And it really sucks. I’m tired when I have no right to be and it’s starting to affect my quality of life.

I hope to revist my doctors soon to discuss next steps. This journey is obviously not over yet.

Weekend update

It’s been a busy weekend. Friday morning was the press conference and the official kickoff of the Parks bond campaign. NFL stars Torrence and Terry Holt joined other city officials to urge passage of the bond. As the marketing co-chair of the bond committee, I helped plan the press conference and some of the talking points used. The location of the Chavis carousel was perfect, the weather was perfect, the messaging was perfect, and it all just came together. What’s more, I was able to collect the photographs of many attendees, all to add to our “I Flip 4 Parks” social media campaign. Oh, and the official website, iFlip4Parks.org, was unveiled as well. Marketing has been a group effort, with the Raleigh Chamber pitching in as well as committee members Jeff Tippett (committee chair), myself, and Patrick Buffkin (speakers chair). The website was designed by Scott Reston with video provided by Napoleon Wright. Everyone did a super job!

Friday afternoon was the visitation for Thomas Crowder, held in the lobby of Meymandi auditorium. There was a huge turnout of people paying their respects. I was glad to meet many of Thomas’s family and say hello to those I’ve already met.
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Gimmie gimmie shock treatment

Yesterday was my appointment to get an EMG and a nerve conduction study done to find out more about my twitchy legs. The technician’s name was Diane and she had me take off my shoes and socks and lie on the table. Diane asked if I was having twitches now and if they were visible. Unfortunately, none were active that I could point her to (though I noticed them again later on the way home).

She then attached a few electrodes to my ankle area and used what is essentially a cattle prod device to run electric shocks into my muscle while a computer charted the responses.

“This is a little more active than I expected,” I told her, not expecting shocks. “I was thinking this would be more passive.”

“Well, we’ve got to check your muscles’ responses to the electricity,” she responded without looking up.
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Twitches continue

My muscle twitches have continued constantly since I first noted my left knee twitching. Now I get twitches in my upper left quadricep, right quadricep, right foot, both hamstrings, buttocks, left calf muscle, and elsewhere. It seems that at any one point in time there is something twitching. It’s as if someone is tickling me, 24 hours a day. It frequently wakes me up hours before my usual waking time. I’m really starting to wish this would go away but so far it has only gotten worse.

I am set to visit a neurologist tomorrow who can hopefully give me some answers. As I pondered my upcoming visit, I realized I had been assuming the doctor could provide some sort of medicine that might still my twitching enough that it wouldn’t disturb my sleep. Tonight I considered the very unpleasant possibility that the doctor can’t do anything to calm my muscles. Never mind whether this is a symptom of a more serious condition – nevermind the underlying cause – what if I was simply stuck with being invisibly goosed for the forseeable future? This alone would suck.

In the darkest corners of my mind is the fear that the mysterious health issues that have occasionally plagued me for decades have now fully latched onto me, having chewed through my body’s defenses. Pessimistic, I know, and premature since I haven’t seen the neurologist yet, but I admit that whatever is affecting me now has my full attention.

People’s Climate March

We attended the People’s Climate March in New York City on Sunday. Over 400,000 people marched two miles through the streets of New York to show their support for action on climate change. It was one of the most fun demonstrations I’ve attended, mainly because there was no stage. I don’t like it when 100 different groups get invited to the stage to pitch their pet causes when I might not be inclined to support them all. This one made no demands other than to show up and march. Easy.

It was quite a thrill to stand in the middle of New York City, feel the growing roar of the crowd as it approached, and then add my full-throated yell, too. There was real power there.

I’ll probably post more on this soon but I’m going through a very busy week with bond stuff and other distractions.
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Parks board and bond

Friday I woke up to an unfamiliar feeling: I was no longer serving on Raleigh’s Parks board. Six years had come and gone in a blink of an eye.

Though I’m no longer on the board, I still get to play a role in promoting parks. I was been appointed by the mayor to serve on the citizen board advocating for the upcoming parks bond. Not only that, I’ve agreed to serve as a co-chair for the marketing and communications team. It’s a great group of citizens and I’m looking forward to making this happen. I will have my hands full for the next several weeks, though. So far, it’s been a blast!

About my left leg

Went to see the doctor today for something I considered a minor annoyance: Ever since I was in Jamaica I’ve noticed a very slight but maddeningly consistent twitch in the bottom of my left quadricep. I remember being on the beach and remarking to our friends the Ambroses that this twitch was driving me crazy. We are solidly into the third week of twichery and things haven’t gotten better.

Of course, after the ice bucket challenges and watching ALS videos, my mind has conjured up the Worst Possible Scenario about what this could mean. Which is stupid. But predictable. This Popular Science article explaining the two types of twitches, for example, has only added fuel to the fire, to wit:

However, involuntary muscle twitches are not all fasciculations, and any non-fasciculation muscle twitch is almost certainly a bad sign. Fibrillation, for example, can be confused with fasciculation, but fibrillation indicates that the surrounding muscle fibers have completely lost their nerve supply. Fibrillations are very bad news, and indicate a serious nerve disorder, like Lou Gehrig’s Disease.

My twitches appear to my not-at-all-medically-trained eye to be the Could Be Something More variety. Thankfully, my doctor tends not to jump to wild conclusions like his patient does, and will treat this as something simple until proven otherwise.
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Back from Jamaica

We got back from our Jamaican vacation late Tuesday night. Since then been too busy to write about it.

I hope to post some thoughts about our trip (and other things) tonight.

Coyote snatches cat from porch

I heard last week of a startling incident that a neighborhood friend witnessed in nearby Belvidere Park. Apparently a coyote helped itself to his next door neighbor’s cat. His wife relays the story:

“He pulled up in the driveway late in the evening after going back to work to check a few things after the kids were in bed.

He said he saw something moving through the bushes on the front porch of our neighbor’s house. Looking at our house from the street, the house to the left of ours.

After he got out of the car, he saw it scamper off the porch. Once it was in the street, he could see it better under the street light. There was definitely something furry and cat-size in its mouth.

We have TONS, and I mean TONS of cats around our side of the street. I’d say anywhere from 10-12 on the regular. A few I know are pets. Others, I haven’t a clue.”

We’ve had occasional reports of coyote-like critters in my neighborhood, some as far back as 2010. This is the first time I’ve heard of one in my area running off with a cat, though. Keep your pets safe and indoors!

Copious free time? What’s that?

I’ve been burning the midnight oil on both ends lately. My new job is keeping me plenty busy (and engaged) but had led to several early Sunday mornings spent doing server maintenance. On top of that, I’ve spent the last few weeks putting together the Ligon PTA newsletter when the parent who had volunteered to do it declined at the last minute. Oh, and family life has also been squeezed in there whenever possible.

Don’t worry, I’ve been saving up a few things to say since then. I’ll get to posting them when I can.