If it’s Monday, this must be DC

Update 2017 Nov 11: Dr. Baraniuk’s paper has been published.

At the top of the “Exorcist” Steps in Georgetown. I climbed these steps to and from my appointment today.

At the top of the “Exorcist” Steps in Georgetown. I climbed these steps to and from my appointment today.


I’ve been on the road for a little while. Last week I was in Seattle for a work trip, spending most of my time in a windowless datacenter. My colleagues and I did get out to visit the Museum of Flight as well as the Living Computer Museum, both which were fascinating to us geeks!

I got home Friday night to spend the weekend with my family before hopping a train north to DC. I’ll be here for the next two days participating in a DoD-funded research study on Gulf War Illness (GWI). The research study involves a bunch of repetitive vital sign measurements, some MRI time, and intense exercise tests. I got through most of the medical forms, vital sign measurements, and interview today but the real fun starts tomorrow when I pedal my ass off on a stationary bike while wearing a SCUBA breather and an EKG harness, then spend an hour cooped up in an MRI while they look at my brain. Then I do it again on Wednesday and celebrate afterward with a lumbar puncture (aka, spinal tap). Yay?

After I had a long interview with the doctor in charge of the research study, he doesn’t seem convinced that I have traditional GWI (or it’s cousin, Chronic Fatigue Syndrome, CFS). He does find my symptoms curious, though, and wants to get me some answers. I don’t know what I’ll find out here, if anything, but I seem to be in the realm of experts. At least I know that my vitals are good and EKG looks “stellar,” in their words.

Being away from my family for two weeks in a row isn’t something I’ve done since my 2006 business trip to Australia, I believe. Can’t say I’m a fan of this much travel. My health is important, though, so I want to find out whatever I can so that I can keep up with my very active family.

One plus of being in DC now is that I had a great view of tonight’s Antares rocket launch which launched from Wallops Island, VA. I saw it from the grounds of the U.S. Marine Corps Memorial with the Potomac River in the foreground and excited kids and dads all around me. Made me wish my excited kids (and my wife) were here with me!

VA Pregnenolone study

For 12 weeks beginning in February, I participated in a VA-funded research study on using pregnenolone to address the effects of Gulf War Illness. Every week I would check in with a research associate, either in person or by phone, and answer a series of questions regarding my health and mental faculties. It involved driving to the Durham VA Medical Center about every other week for bloodwork and cognitive testing. I would also often return with a dose of pregnenolone for that week.

The cognitive tests were challenging and the worst part of the study. Bloodwork by comparison was a breeze, but when asked to study images of shapes and mentally rearrange them or to recall a varying, long list of fruits and vegetables I would begin to sweat. I hated those tests especially.
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Enhancing Cognitive Function with Pregnenolone – Life Extension

I’m participating in a VA research study on pregnenolone and its helpfulness in treating Gulf War Illness.

As a result of normal aging, key hormone levels decline, resulting in a detrimental impact on memory and cognitive function. Scientists believe that the hormone pregnenolone has vast potential for maintaining healthy cognitive function and may be “the most potent memory enhancer yet reported.”

Pregnenolone is the first hormone in the pathway that generates a host of key neurohormones in the brain that are known to affect nerve cell growth and to modulate various moods. Pregnenolone therefore has a dominant effect in a wide range of nervous system functions. This is borne out in research that has demonstrated pregnenolone’s ability to reduce the risk of dementia and improve memory, while also alleviating anxiety and fighting depression. Increasing cognitive function is a key goal for any aging baby boomer.

As natural levels of pregnenolone fall, ensuring optimal levels may represent a crucial cornerstone to every adult’s cognitive wellness program.

Source: Enhancing Cognitive Function with Pregnenolone – Life Extension

Thanksgiving at sea

It was Thanksgiving in 1991, a time near the end of my tour aboard the USS Elliot (DD-967). We were nearing the end of our three-month Persian Gulf deployment, bored nearly shitless with endless tacking around the warm bathtub known as the Persian Gulf. I was on the far side of the world from my home, sick of looking at skies that were either hazy with desert heat and sand or blackened with the smoke from still-burning fires in Iraq’s oil fields. It seemed the end of my enlistment couldn’t get here fast enough.

In spite of my homesickness, in spite of the boredom of the Gulf, in spite of all the griping I could have been doing that day, I knew down on the mess decks awaited a scrumptious Thanksgiving dinner with turkey, ham, stuffing, and the works. I was healthy and fit and (like my shipmates) took great cooks, air conditioning and my bed with me everywhere I deployed.
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The VA’s crystal ball

VA diagnosis by crystal ball

VA diagnosis by crystal ball


The Veterans Administration is the most amazing medical system anywhere, bar none. I had always been under the impression that rendering a diagnosis required a doctor but somehow the VA can do it without one.

After years of mysterious health issues, I finally got mad enough two weeks ago to file paperwork to enroll in VA coverage. A day or two after mailing my paperwork I was delighted to receive a phone call from a VA representative who helpfully set me up with an appointment. Having long worked in customer service, I was impressed with my representative’s knowledge of his job and his rapport with his customer. In fact, I was already working on a blog post and even considered sharing my praise with Rep. David Price. All was looking up until I got this fancy-looking, full-color customized booklet in the mail yesterday. On page five was the bad news:
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Twitches and fatigue

My initial optimism about the magnesium supplements helping with the muscle twitches I’ve had has worn off. The twitching has continued, spread out all over my body now. In fact, one night last week I felt the muscles between my shoulder blades twitch when I was sleeping – waking me up. It’s the biggest damn pain in the ass.

To top it off, we had only walked about the fairgrounds for about an hour before I started feeling very fatigued. I felt like my arm and leg muscles were slow as molasses. It dawned on me that night that I am finally able to effectively define fatigue versus simple tiredness. Fatigue is like tiredness but without the mental urge to sleep. Fatigue is not having any energy while still maintaining the will to do something. The mind is willing but the body unable. It seems that the fatigue that would once make a visit to me for a few weeks every year or so has begun to occur far more frequently and persistently. And it really sucks. I’m tired when I have no right to be and it’s starting to affect my quality of life.

I hope to revist my doctors soon to discuss next steps. This journey is obviously not over yet.